Dysautonomia/POTS Organizations

There are many amazing organizations and non-profits that accept funding to donate to research, training, and educational programs to help improve the lives of individuals living with dysautonomia and POTS. Here are a list of a few of my favorite ones:

• Dysautonomia International is a non-profit that seeks to improve the lives of individuals living with autonomic nervous system disorders through research, physician education, public awareness and patient empowerment programs. Their donation page is https://www.dysautonomiainternational.org/page.php?ID=4
• Standing Up To POTS “The mission of Standing Up to POTS is to improve the quality of life for people living with postural orthostatic tachycardia syndrome (POTS) through research, advocacy, and support.” Their initiatives page is https://www.standinguptopots.org/welcome/our-initiatives
  
• Awareness for POTSies “We strive to be a voice of hope and source of community for those navigating postural orthostatic tachycardia syndrome (POTS) and co-occurring conditions. Our mission is to increase awareness, empowerment, support, and education for individuals who are diagnosed, in addition to increasing awareness and education within the medical community. We don’t want anyone with POTS or other co-occurring conditions to feel isolated or alone.” Their donation page is https://www.awarenessforpotsies.org/donate
• The Dysautonomia Project is a non-profit collaborative effort of volunteer healthcare providers, patients, and community leaders working together to bridge the gap between what autonomic specialists know and what community-based providers and patients need to know.  Their donation page is https://thedysautonomiaproject.org/ways-to-give/
• American Autonomic Society was established to bring together individuals from diverse disciplines who share an interest in the structure and function of the autonomic nervous system and in the pathology, treatment, and prevention of its disorders. Their donation page is https://americanautonomicsociety.org/donate-to-the-aas/
• POTS UK supports and educates patients, family, friends and healthcare professionals within the United Kingdom about this under recognised and commonly misdiagnosed condition by sharing up to date evidence and resources. Their donation page is https://www.potsuk.org/donate/
• The Australian POTS Foundation is committed to improving outcomes for those with POTS by raising funds for improved research, advocacy and support for those living with POTS. The Foundation is currently run entirely by volunteers.  Beyond minimal running costs, all funds raised will go directly to improving research, education and support for those with POTS in Australia. Their donation page is https://potsfoundation.org.au/get-involved/

To be added to this list please go to the contact me page on my website!

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