About Me!

Being diagnosed with a disability can leave someone feeling extremely isolated and alone, as if they are somehow different from everyone around them. Having an invisible disability can make that feeling even more amplified, as the struggles are not immediately apparent to other or even yourself sometimes.

My journey took a drastic turn when I was diagnosed with an invisible disability called postural orthostatic tachycardia syndrome, POTS for short, as I entered my sophomore year of college in 2021. When I received my diagnosis, my friends and family tried to be as supportive as they could be throughout the process, but despite their best intentions, I felt profoundly isolated being the only person with POTS in their orbit. It was a very lonely experience as no one in my circle, including myself, had any knowledge about POTS or what my life would turn into following this diagnosis. My entire existence changed overnight and simultaneously everything made sense, and nothing made sense.

As I began to navigate this new reality, I sought out as much information and support as I could find. It was overwhelming at first, but since then, I have been lucky enough to find more friends with POTS, celebrities I look up to who have POTS, and an online community who understand the unique experience of what it’s like to live life like this. This sense of connection has been the most valuable thing in my journey and has allowed me to realize that I am in fact not as alone as I once thought. Through these connections, I have learned that there is power in POTS and in the POTS community. It is a community that fosters understanding, support, and shared experiences that I have felt compelled to contribute to in a meaningful way.

I created this platform not only to expand both the POTS community, but also to spread awareness about POTS to those who want to know more about this syndrome from someone who has experienced it firsthand. My goal is to create what I was looking for, a resource that offers support, insight, and connection, when I got my diagnosis. As a college student in Nashville, Tennessee, on the verge of graduating, I am simply an individual who happens to be disabled and is willing to share my story. My aim is to share any tips I have gathered and research I’ve compiled, along with my personal journey in the hopes it will help at least one person navigating a similar path. Through this journey I have come to understand the importance of being seen, heard, and understood, and I am excited to contribute to a community that means so much to me.

I will be doing a “POTS Moment of the Week” on all socials so if yall have any good POTS moments please submit them to be next weeks “POTS Moment of the Week”! I also have set up a place for you to share any of your best potsie or POTS ally tips to be shared in my pages so please send in all you got! I want you to be a part of this journey : )

I can’t wait to see where this journey takes us. I will be updating my blog here weekly and will be posting to my socials daily. Email me if you have any comments, suggestions, or funny jokes to share!

If you would like to join me on this journey be sure to subscribe to my email list and to my socials to stay up to date with all things Power in POTS! <3