With POTS, there is what feels like a million things that can trigger a symptom flare up at any time. These flare ups can range anywhere from more minor symptoms happening to being unable to sit up or do anything at a moments notice. For an case, an emergency kit Read more…
Under the Americans with Disabilities Act, schools and employers are required to give disabled students and employees “reasonable accommodations” to enable disabled individuals to have an equal opportunity to participate in an academic program, hiring, training, promotions, pay, and social activities. “Reasonable accommodations” are accommodations that do not impose an Read more…
Trigger warning: talk of pregnancy complications and loss There have been very few studies on how pregnancy and POTS affect each other, even though around eighty percent of POTS patients can get pregnant. One of the only places I could find information about pregnancy and POTS was the National Read more…
When people think of POTS symptoms, the ones that come to mind are typically passing out or nausea or something physical, but they rarely think about the mental side effects of dealing with an invisible disability with POTS. Some of the biggest mental side effects of being a potsie are Read more…
There are many amazing organizations and non-profits that accept funding to donate to research, training, and educational programs to help improve the lives of individuals living with dysautonomia and POTS. Here are a list of a few of my favorite ones: Dysautonomia International is a non-profit that seeks to improve Read more…
Many people who have been diagnosed with postural orthostatic tachycardia syndrome have to deal with much more than POTS. It is more common than not that people with POTS also have at least one other co-occurring condition that either sparked their POTS or just add to the symptoms that they Read more…
As defined by the National Institute of Neurological Disorders and Stroke, “Postural orthostatic tachycardia syndrome (POTS) is one of a group of disorders that have orthostatic intolerance (OI) as their primary symptom. OI is a condition in which an excessively reduced volume of blood returns to the heart after an Read more…
It is hard to know how to support someone going through something as difficult as living with a chronic illness when you have not experienced it yourself. It can be extremely daunting at times but as long as you are willing to learn and grown in your support, it is Read more…
A day in the life of a potsie can range drastically depending on so many variables. On a good day, I can go without feeling any real symptoms. My heart rate on those good day typically range 50 beats per minute to 115 beats per minute. On those days, I Read more…
One of the biggest obstacles for people with POTS is actually getting an official diagnosis. I was nineteen when I got my diagnosis even though I have dealt with symptoms my entire life. It took me at least ten different doctors and specialists and around three years after the day Read more…